ALC 15 year strategic plan 2012-2027
Anindilyakwa Land Council
Anindilyakwa Land Council annual report; Anindilyakwa Land Council strategic plan; Reports; PublicationNT
2012
Made available via the Publications (Legal Deposit) Act 2004 (NT).
English
Anindilyakwa Land Council (N.T.) -- Periodicals; Aboriginal Australians -- Northern Territory -- Groote Eylandt -- Periodicals
Anindilyakwa Land Council
Alyangula
2012-2027
Anindilyakwa Land Council
https://hdl.handle.net/10070/254602
https://hdl.handle.net/10070/529654
ALC 15 year Strategic Plan 6. Goal B: Best Practice Service Delivery 62 A major outcome of the Strategic Plan is to advocate for measures to establish a substantial local workforce to cater for senior people and patients of MJD and chronic diseases. INCREASE AGED CARE SERVICE GEBIE currently provides funding to the Mungkadinamanja Flexible Aged and Disability Care Centre in Angurugu, which provides aged care services to all three communities. The building is well maintained and originally built to community design. The ALC is committed to contributing funding via GEBIE to expand aged care infrastructure and work with other stakeholders to ensure local aged care residents receive the best care possible. Some additions will also be necessary to expand the service for people affected by MJD. While the ALC is prepared to commit royalties to these needs, it is clear that given the scale of the issue, funding will need to substantially come from Federal and NT governments via mainstream health funding channels. A recent review of aged care in the region found that aged care services were only partially meeting the communities needs for aged care. It also found knowledge about the full range of activities that could be provided by an aged care service was generally low. The ALC believes it is important that the service is expanded to offer increased day and/or overnight respite as well as long term residential care, supported accommodation and increased specialised care for MJD clients. Currently, use is limited to occasional short time overnight/period respite and palliative care short stays. This is partly due to challenges with introducing local staff to work shifts. The community needs to be consulted on the expansion of these services and whether they would see services for aged, disability and MJD centralised into one complex for the whole Groote archipelago or that services would be located within each community. Another priority for the ALC is encouraging the numbers of Anindilyakwa people working in the health sector. The ALC will look at avenues to promote local residents to work in the health sector and to take up training that can lead to a job in the field. Building a workforce now will provide the opportunity to expand services in the future and empower people to be independent. ENSURE CARE FOR MJD PATIENTS Machado Joseph Disease is a genetic neuro-degenerative disease. There is currently no cure, and individuals living with the disease are progressively unable to use their muscles until they become wheelchair bound and completely dependent on others. To care for a person with moderate through to severe MJD is a difficult job. Individuals with MJD need help for all personal, community and instrumental activities of daily living, and have a lot of problems with sleeping, swallowing, feeding themselves, communicating, going to the toilet etc. Family carers become exhausted as they are often up for most of the night helping the person with MJD. It is physically hard, because the person with MJD must be