Territory Stories

Ayakwa : a publication of the Anindilyakwa Land Council



Ayakwa : a publication of the Anindilyakwa Land Council

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Anindilyakwa Land Council newsletter


Anindilyakwa Land Council


Ayakwa; PublicationNT; E-Journals; Ayakwa






Date:2012-11; October/November; Made available via the Publications (Legal Deposit) Act 2004 (NT).; This publication contains may contain links to external sites. These external sites may no longer be active.




Groote Eylandt (N.T.); Anindilyakwa Land Council; Aboriginal Australians; Land tenure; Periodicals

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Anindilyakwa Land Council

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Issue 11, October/November 2012 Edition

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Anindilyakwa Land Council



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CMYK SPOT A | 17 Ayakwa | October/ November 2012 Issue 11 Zebra fish in tests for MJD cure HEaLTH & WELLbEInG a research project is using zebra fish to try to find a treatment for Machado Joseph Disease (MJD). The ALC, in partnership with the MJD Foundation funded the first phase of the internationally ground breaking research project at the Brain and Mind Institute in Sydney. MJD Foundation used a $1 million research fund established by the ALC to fund the project. Professor Garth Nicholson leads the research and has brought in Dr Angela Laird who returned home to Australia in 2010 after working in Europe where she used zebra fish to model other forms of neurodegenerative diseases. In May, the Foundation invited the ALCs Tony Wurramarrba, Joaz Wurramara and Mark Hewitt to the laboratory. Foundation vice chairperson Gayangwa Lalara also visited. The lab was very interesting and Angela explained things well to me, Gayangwa said. I understand more about the work she is doing and I feel proud that we are part of this research which might one day be able to help our people suffering from this disease. The pilot phase of the project is due to be completed in early 2014, at which time a larger grant will be sought from the National Health and Medical Research Council (NHMRC) to continue this important work. Foundation research director Libby Massey said this was an important project and one the ALC could be proud of. It may have benefits for all people in Arnhem Land who live with Machado Joseph Disease, and the outcome we hope for is that a treatment will be found to slow down the progression of the disease, Libby said. PILoT PHaSE: Dr angela Laird explains the research to Tony Wurramarrba and Joaz Wurramara from the aLC. All your chronic disease questions answered I specialise in the following areas: cardiac (heart problems), diabetes, and kidney disease, Sarah said. I aim to help improve health outcomes of the people in Angurugu by providing you with education about your condition and explain why we humbug you to take your tablets. If you have a chronic disease, it is important for you to be aware of what it is and how to manage it effectively before you get too sick. Clinical staff member, Sarah answers your questions here: How often do I need to go for checks? It depends on what is wrong with you. Most people will need to have a check up every six to 12 months and more often if you have sick kidneys. How do I know how often I need check ups? You can discuss this with any of the clinical staff. We can also print you a yearly schedule of your upcoming checks so you keep track of when you are due. We will also have a list of names up on the noticeboard at the shop for people who are due for check ups for that month. If you do not want your name displayed on there, please inform staff at the health centre. What if I dont want to have check ups? If you choose not to have your regular checks, we can remove you from the lists but we would like to discuss this with you in person first. Why do I need to have a chronic disease check? We encourage everyone with a chronic disease to have regular check ups because this can help keep them feeling stronger for longer and reduce big sicknesses and help keep them in the community and out of hospital. Im not sure if I have a chronic disease or not, how do I find out? Go down to the health centre to have a chat with one of the clinical staff. What is a chronic disease? A chronic disease is a disease that is long-lasting or keeps coming back. Chronic diseases such as heart disease, cancer, and diabetes are the leading causes of death and disability in Australia. I dont have a chronic disease so do I still need check ups? Yes. We encourage everyone over the age of 18 to have an adult health check every two years. This is to discuss any health issues you may already have, and includes healthy lifestyle advice to help prevent you from getting sick. If you are unsure of anything, go to the health centre on a Wednesday and speak to myself or any of the clinical staff, Sarah said. We are here to help you. And remember that you dont need to be sick to come to the health centre; we want to help prevent you from getting sick. Wednesdays are chronic disease days at angurugu Health Centre. Clinical staff member, Sarah Marsh is inviting people to attend for their regular chronic disease checks. CMYK